Privacy
Your genome is yours.
What we collect, where it lives, for how long, and how to ask us to remove it. Written in plain language because the alternative is unworthy of the material.
Notice v1.1 · Effective 2026-06-19
- 01
Your data is yours
Your genome, your bloodwork, your fitness data, your questionnaire, all of it remains your property. We act as a steward, not an owner.
We never sell your data, and we never share it for advertising or research. To produce your analysis we rely on a small set of named sub-processors (listed in section 03), each bound by a signed Data Processing Agreement and permitted to process your data only to deliver the service to you. We do not use your data to train machine-learning models, and our sub-processor agreements prohibit them from doing so.
- 02
What we collect, and why
We collect only what is needed to prepare your analysis, in three categories.
- IdentityYour name and email, to address your analysis and reply to you personally. Your shipping address, only if you order our saliva kit.
- Application contextThe areas you ask us to analyse, the DNA situation you describe, any notes you leave on the questionnaire. Used to scope the proposal.
- Health & genetic informationYour DNA file (when you upload one), any bloodwork PDF or photograph you share, any fitness and activity data you upload or choose to connect from a wearable account (such as Oura, WHOOP, Withings or Polar), and the deeper profile you may fill at /study/profile. Used solely to interpret and write the Precision Longevity Analysis you requested.
- 03
Where it is stored
All personal data is encrypted at rest and in motion using industry-standard ciphers (AES-256 for storage; TLS 1.2+ for transport). We rely on the named sub-processors below, each under a signed Data Processing Agreement, and only to deliver your analysis, never for advertising or research:
- SupabaseDatabase (US East region). Stores your application record, profile answers, status timeline, internal notes. Row-level security limits each row to the email it belongs to.
- MailgunTransactional email infrastructure (EU region for our domain). Used to send and receive messages with you. Email content is retained on Mailgun servers for a limited window per their default policy.
- VercelApplication hosting and Vercel Blob storage (US). The site you read these words on, plus short-lived storage of any DNA, bloodwork, or fitness file you upload (purged once the operator's mailbox holds the record).
- SelfDecodeGenetic analysis engine (United States). Your genotype is processed by SelfDecode to produce the variant-level analysis your Precision Longevity Analysis is built from; if you order our saliva kit, your name, shipping address, email and phone are also shared so the kit can be sent and your sample genotyped. This is the most sensitive data we handle, covered by a Data Processing Agreement, and under our Data Processing Agreement may not be used by SelfDecode for advertising, research, or model training.
- MapboxAddress autocomplete (United States), used only if you choose the saliva-kit option. The shipping address you type is sent to Mapbox to suggest a valid postal address. No genetic or health data is ever sent to Mapbox.
- Connected wearables (only if you connect one)If you connect a wearable account (Oura, WHOOP, Withings or Polar) from your Fitness tab, you authorise a single read of a compact activity, sleep and heart-rate summary. We store only that summary, retained with your other health data (Section 04); we never receive your wearable login, and the access permission is discarded right after the import, so we hold no standing access to your account. Each provider is the independent controller of the data on its own platform; reconnect whenever you want to share a fresh summary.
- 04
How long we keep it
We keep your data no longer than we need it to prepare and stand behind your analysis. The periods below are guidelines for how long we may keep each type, not a promise of automatic deletion on a fixed date.
Deletion when you ask is the firm commitment: write to privacy@helixirgenomics.com and we remove your records, the genetic file, and the related correspondence.
- Genetic data (DNA files, polygenic results)We may keep this for up to around 7 years, so you can return for a re-interpretation as the science moves. Removed sooner whenever you ask.
- Bloodwork, fitness data, and profile responsesKept for up to around 5 years, and removed sooner on request.
- Application + email correspondenceKept while useful for our records, and removed on request.
- Audit log (who-sent-what)Retained indefinitely as required by California Civil Code Section 56.18 for the audit of genetic-data access events.
- 05
Your rights
You may, at any time and for any reason, exercise the following rights. We will respond within five working days, and never charge a fee.
- AccessReceive a copy of all data we hold about you, in a portable format (JSON + the original DNA file we received).
- CorrectionAsk us to correct anything inaccurate, a misspelled name, a wrong area selection, an outdated bloodwork value.
- DeletionAsk us to remove all your data from our systems. We comply within five working days. The printed analysis you received remains yours; we cannot retrieve the printed copy.
- PortabilityReceive your data in a structured, machine-readable format so you can take it elsewhere.
- Restriction & objectionPause our processing of your data, or object to specific uses, while we work through any concern you raise.
- 06
How to ask
Send a single email to privacy@helixirgenomics.com from the address on file. State which right you wish to exercise, access, correction, deletion, portability, restriction, or objection. We treat every such request personally.
Withdrawal is total. Your DNA file, your bloodwork, your questionnaire and profile responses, every derived analysis and every email exchanged, all removed from our systems on confirmation.
- 07
Genetic data, additional disclosures
Genetic information receives extra protection under California Civil Code Section 56.18 (the Genetic Information Privacy Act, also known as CGIPA or SB 41), as well as analogous laws in Florida (FGIPA), Maryland, Tennessee and Utah. We honour these protections regardless of where you live.
Specifically: we will never disclose your genetic data to any insurer, employer, school, or marketing partner. We will not transfer your genetic data outside the United States without your written consent. We will not use your genetic data for any purpose other than the assessment you commissioned. If any of these conditions ever change, we will notify you in advance and ask for written agreement before processing one more line of your DNA under the new terms.
- 08
Cookies, analytics, and the public site
The public site does not place any third-party advertising or tracking cookies on your device. We use privacy-respecting analytics that do not identify you personally. Sign-in uses one cookie set by Supabase to remember your session on /my-account; it expires on sign-out.
- 09
Security
Encryption at rest (AES-256) and in motion (TLS 1.2+). Row-level security on every database table. Access restricted to the named genomics scientist performing your assessment and to operational staff strictly on a need-to-know basis. Genetic, bloodwork and fitness files are held only briefly, behind unguessable storage URLs, and removed once your application record is in place.
If we ever experience a security incident affecting your data, we will notify you and the relevant authorities in accordance with applicable breach-notification laws (state-by-state in the US, the GDPR-mandated 72-hour window in the EU).
- 10
Contact
For any privacy concern, write to privacy@helixirgenomics.com. We treat every message personally.
Helixir Genomics (Adriano De Marino, sole proprietor), California, United States.
Material changes to this notice are announced to every active client by email at least 14 days before taking effect. If you do not wish to continue under the revised terms, the deletion right in Section 05 stands.